A blog about diabetes, voldemort, and how many carbs are in *that* piece of chocolate cake
Search This Blog
Monday, 28 March 2016
Happy Birthday, Sweet Morty
As of yesterday, Morty (my diabetes) officially turned 4 years old. An Easter diaversary. Morty is nearly school-aged. I dread the day when Morty learns to count and realises that throughout the year I have only bought it 36 presents, throws a Dudley and starts screaming at me "36! But last year, last year I had 37!". I suppose I will have to do a quick Petunia on the situation and promise to buy it another 2 new CGM sensors to stop a full-blown blood sugar control meltdown from happening.
I suppose I might buy Morty a card. But what do you say to diabetes?
If I loved my diabetes more, I might talk about the day I bought it home from the hospital with me. And how bloody confused I was leaving after an overnight stay with a permanent part of my life that I didn't know how to care for. Would I tell Morty that I never wanted to bring him home with me, and wished I could leave him sitting in a bed of his own at the hospital forever? I probably wouldn't want to tell him he was unplanned.
I won't go off on that tangent though, because I don't love my diabetes enough to reminisce fondly about the first time I held a needle to my stomach.
I could talk about how it Morty has grown as a disease. The progressions I saw after getting past that initial 3 month period when my world became a complete blur of eating, injections, sleeping and crying everywhere.
How I saw changes as Morty grew from that volatile infant state to toddler stage. I sort of knew what I was doing and was managing to look like I had my shit together. I could leave my house with my hair and make-up done; looking composed and not at all like I had just dealt with a tantrum of epic proportions.
Maybe then I will talk about my dreams and hopes for Morty's future. How much I'm hanging out for him to grow up, because I'm not as fond of his childlike behaviour as he thinks I am. I have been told, however, that an unfortunate aspect of raising a condition like Morty, is that they don't grow up. The most I can hope for is that with lots of therapy (and money) his tantrums may become a little easier to control. That as he grows, I will get to know the early warning signs of a melt-down and soothe him before I'm left with a screaming toddler disease in aisle 3 of the supermarket, because he wants lollies NOW.
The sign off would probably read: 'Happy Birthday, sweet Morty.'
Saturday, 26 March 2016
Hypo Tax got me like....
Monday, 29 February 2016
Diabetes.It
In Italy, I found 2. Or 2 found
I met the first Type 1 diabetic in Venice. My husband and I were on a bit of a search for good gnocchi. Google recommended 'Osteria Al Milion', so off we went.
![]() |
| Just need a miniature quaffle... |
"I have one too". Proudly, she lifted her shirt to show me her pump. "But mine is old". A beautiful and well kept white MiniMed Veo sat clipped over the lip of her trousers. If hers was old, she must have taken the best care of it. King is less than 6 months old and he looks like he's been in a few cat fights in that time.
I smiled in acknowledgment and she took the encouragement, coming over to stand next to us. "Your only the second person I have seen with diabetes. I saw another pump once, in the market." She paused. "It's hard".
I agreed with her, and we had a bit of a chat about the joys of diabetes. By now, the restaurant was filling up a bit. She excused herself as our food arrived. Before she left to attend to other patron she turned back with a warm smile, and gave me the carb counts to my gnocchi, the panna cotta I had ordered for desert and the bread I had eaten.
![]() |
| Pannacotta...carb count: Delicious so it doesn't matter. |
A week or so later found my husband and I in Sorrento (where the weather was remarkably warm). From Sorrento, we took a day trip out to Pompeii, which was only a half hour train ride by the Circumvesuviana line. Pompeii was quite warm, and for the first time since arriving in Europe, I was walking around blissfully sans jumper, T-shirt only. My T-shirt of choice just so happened to be my Type 1 Diabetes memes, "Type One Dia-Bad-Ass" Tee.
It was as my husband and I were trudging our weary way back out of Pompeii that I found my second diabetic in Italy. I was just hitting hypo (after a 3 hour walk around Pompeii in the sun) and focusing on placing one foot in front of the other when I heard "Are you diabetic?". My head swivelled towards the direction the magic word had come from. "I saw your T-shirt". An American girl had outstretched her hand towards me, holding in it, yet another glorious Medtronic pump.
"Yep!" My face split into a shaky-hypo grin.
My husband shook his head as the American Girl and I started up a conversation. "Seriously? You have a superpower. Stand together, I'm taking a photo".
We obeyed, and he clicked a photo, while her friend (or boyfriend, I don't know) did the same.
I didn't find out her name, but I do have a picture of her. And I know she's from California, and that she's excited for the 640G, which they don't have in America yet, but her UK friends have told her all about it. I also know that she's awesome by default.
I'm in England now, and just waiting for London to give up the diabetic goods!
Friday, 12 February 2016
Brisbane Airport Take 2
I don't know how this is going to turn out.
I'm snuggled up in my hotel room in South Korea right now, tapping this out on a portable keyboard the size of my hand, and fighting with blogger about how to login from a tablet. Blogger is definitely winning this fight, and has forced me on to a very basic app with little functionality. But I'm trying anyway, just so Blogger knows that it hasn't broken my spirit yet.
So my honeymoon Fiiinally rolled around. Only 9 months after my wedding (That sounds like a long time. I could have had a baby in that time if Id wanted to!) We're off to Europe for a month, with a stopover in Korea tonight.
My insulin is back in the Fridge (*fingers crossed it lasts because the Fridge to Go was pretty much room temperature when we got to the hotel), and my BGLs behaved quite nicely on the plane, stayingf between 4 - 10.
I did get randomly seletced to do a full body scan at Brisbane International. My immediate thought was panic. Followed by panic. Then I remembered the handy little airport security card Medtronic give you, which yes, I had bought with me.
So random security guy (who looked very familiar,) who picked me out for this is trying to tell me the full body scanners are fine to go through with a pump because people with pace makers go through. I wasn't having any of it and thrust my little palm sized airport security instructions under his nose. Unfortunately for me, the instructions do say that the pump is removable (which contradicted my doctors note). So my options were limited. I had to do the scan.
I made it really obvious that Iwas feeling very anxious about taking my pump off and just handing it over to a random I had never met before. They must train them better at International, because he actually listened. He explained the process step by step, and answered all my questions (unlike the last security douchebag I came across in domestic.
The deal was that he would walk my pump around the scanner, in my sight at all times. Then he stood at the other side of the scanner as I got in. As Igot scanned, he held the pump up in the air, hands towards me, at my sight level. Door opened, I got my pump back. Then he walked me over to the dexplosives/drug swab dude, explaining exactly why they were swabbing the pump, which was basically because it hadnt been through any screening points.
Whilst I wasn't entirely happy at having to take my pump off and hand it over, I was very thankful to the security guy for realising how anxious I was about this and taking the time to explain what was happening and why, and doing what he could to help a situation that I wasn't comfortable with.So kudos to him.
Only 2 more airports to go through, and hopefully I won't get selected for 'random screening'.
Monday, 1 February 2016
Tabletop
I have suspicions my husband likes doing this so much as a couples activity because I can't breathe heavily and talk at the same time.
On Sunday we decided that doing death by Tabletop might be a good idea, as we were staying in Toowoomba for my bestie's housewarming.
| Tabletop as seen from Picnic Point |
Hugh, my bestie & I set off for Tabletop. The trip there was a whole lot of me and my anxiety freaking out about taking my little tiny Micra out on a dirt road to the wilderness*, and my bestie explaining as calmly as you can to someone with irrational phobias that her sisters little Swift did the trip 3 times a week.
We did eventually make it. All of my car tyres didn't spontaneously and simultaneously puncture on the gravel and go flat, so that was a plus.
Tabletop isn't a far walk. It's less than 2km return. It is a bit of a scramble though. You start up a steep little camel hump, get about 5 meters of reprieve, before the path is no longer a path. It becomes a jumble of quite large rocks that you need hands and knees (and in my case, bum) to scramble over. At one point I knocked my cannula, which was in my leg, heavily into a rock as I pulled myself up.
At the end of the camel's hump & the start of actual Tabletop, my BGL was quite comfortably on 13. I was happy with that; having purposefully not given at insulin at breakfast in order to exercise.
We continued the scramble, climbing up a steep path of shale. Rocks that slid underneath your feet as you climbed. This was probably the most exhausting part of the climb up, and probably the only spot we paused to catch our breath.
![]() |
| Looking up at the last climb |
![]() |
| A flatter area of shale |
My husband and best friend climbed up while I did more BG checks. BG was still good.
We started our climb back down, slowly over the shale, as it slipped even more when you head downhill. Then scrambling back over the camel's hump. About halfway back over the rocks, I spotted a shiny little familiar object in a small gap between the rocks.
A test strip. One that I could identify had come from a Verio meter. Somehow, as my legs ached from pushing up over and over again, I found it comforting to know that one of my kind had been here before me.
With renewed vigor (and feeling spurred on by being able to see the speck that was my car below) I finished the walk. BGL was 10.2.
I would have called it a success. Except for one minor detail. Remember that bump to my cannula earlier? Neither did I. Until an hour later when my pump was alarming 'No Delivery, blocked insulin flow'. A BGL of 23.3 (a 13 point rise in an hour) makes you feel pretty sick.
There's nothing like being physically exhausted with a high BG.
Thanks D, I really owe you one.
*Where the supposed wilderness is probably less than 5km from Toowoomba itself. We definitely could have walked back to civilisation in less than 2 hours. But try telling that to anxious me. Anxious me doesn't listen to reason very well. After all, I think Mt. Coot-tha is in the wilderness, and I managed an amazing panic attack the other day when my husband got us lost in Daisy Hill Reserve (I actually laid down on the dirt path and proclaimed I didn't want to die, and only felt relieved when we came across a sign pointing back to the car park).
_________________________________________________________________________________
Reason Why I'm Hypo: After correcting that 23.3, I spent between 6 - 8pm hypo with BGLs between 2 - 3. I can't say if it was due to the exercise or the ridiculous heat wave Brisbane has going on right now.
Thursday, 28 January 2016
Be Prepared
I forget where I was going with this post, because I am definitely replaying the Lion King in my head right now. I know what I'll be watching tonight.
Be prepared. Constant Vigilance.
Listening to Made-Eye has taught me well (But really, when has anything from Harry Potter not taught me well?).
I keep a spare vial of insulin in the fridge at work. Because CONSTANT VIGILANCE. I take spare needles with me because CONSTANT VIGILANCE. Spare Lancing device. CONSTANT VIGILANCE.
When you're diabetic, constant vigilance works out well. Diabetics are still, surprisingly, human. Humans make mistakes. Some humans might leave home with 2 hours left in their reservoir. Some humans might arrive at work, and find out they didn't remember to bring any extra insulin with them. Or reservoir connectors.
So I am very grateful for all these safety measures that I put in place. The insulin in my office fridge saved me a dash home during peak hour. The pen needles in the bottom of my bag meant I could inject the insulin into the reservoir in lieu of having no connectors.
A spare lancing device meant that when I was coming back from Japan a few years ago now, and my husband dropped and lost my lancing device in a crowded plane, I could still test my BGLs.
Diabetes requires CONSTANT VIGILANCE.
Friday, 15 January 2016
Always
Monday, 11 January 2016
R.E.S.P.E.C.T
A mere 2 hours later, in a completely unrelated manner, I had a friend throw this picture up on Facebook:
What I'm sure was meant as a self-congratulatory pat-on-the-back came across as insensitive and uneducated on many levels. This picture tells people to be ashamed of themselves if they can't 'say the same'. It offers no chance for explanation (not that any is needed. In this life we live, stuff happens all the time that is completely out of your control). It again reinforces that specific diseases can make us less worthy to be called human beings. Having or not having AIDS does not make you a better person, nor does it increase or decrease your worth as a person. It doesn't change who you are as a person or what you've done, or will do, in your life.
It made me appreciate Elle's article even more.
Even the title of her article gave me the 'I feel you' fuzzies that can only come with knowing someone else out there gets you, however indirectly. Titled 'Why I Love Telling People I have Herpes', I feel very similarly about my T1D. Life and my interactions with others becomes so much easier when my T1D is announced and out in the open. Just like the author, Elle, I had a brief 6 month period where I felt like less of a person, and more a giant cesspool of self-blame, for having a disease that has been so stigmatized as something to be ashamed of. Diabetes is very much portrayed as a lazy persons disease with a very defined description of how hideously awful we are as human beings. I briefly wondered if I would wake up one day and have transformed overnight into the stereotypical diabetic - terribly unmotivated, largely obese and all of a sudden extremely ugly. Safe to say that so far that hasn't happened to me - because so far, diabetes is a disease that doesn't concern itself with how you look or act - It just picks a person and forces them to become best friends forever.
Like Elle, I also get a little kick out of the moment I tell someone I have T1D. Their reaction often opens up a natural conversation about T1D and Diabetes in general and gives me a chance to educate someone about what living with diabetes is really like. Its a chance to change the way we view and think of people with diabetes in a negative sense and hopefully one day, turn diabetes into just another disease that sucks to have, instead of a disease that society says we should be ashamed to have. A chance to reintroduce the human aspect of living with diabetes. I can only hope that if enough of these conversations are going on - by people with all types of diabetes - that there might be a day in the future when I am not asked why I am not fat.
People with Diabetes deserve to have their disease and their own sense of self treated with respect. The current generalised attitude denotes one of shame, avoidance and denial. Whilst we know people in the medical profession are taught the pathophysiological mechanisms of diabetes and its contracture, they too can become prey to this way of thinking that we should do as they say because we brought it on ourselves to begin with. Too many stories of doctors or nurses treating a person with diabetes as a lesser person or someone who needs to be 'controlled' by them, because of the way they percieve us, and our apparent lack of respect for self.
I have self-respect in bucketfuls. Self respect is far deeper a notion than how many minutes you worked out for today or what food you put in your mouth. Self respect is about consideration for your body, and all of its needs, including sometimes, the need to forego looking after one aspect of your health, in order to build up another. Its about recognising that balance between mental and physical health. You can have self respect and be in burn out. To me, self respect is about being able to speak up when people say or do something that doesn't sit right with you - including telling a medical professional that maybe they haven't got it right. Because I respect my body so much, that I do all sorts of unimaginable things to make sure I keep kicking on. Its through respect of my self and my body that I push needles into my skin and lancet my fingers.
We need more Elle's in this world. People who'll tell it like it is, and take embarrasment and shame away from ordinary situations.
Wednesday, 6 January 2016
Meet Mr. Awful
One of those gigantic mistakes I don't want to face up to. Not just because the degree was worthless and a waste of all of my HECS money (ohhhh, the HECS money).
But because I hadn't really become 'me' yet when I did that degree. I was miles away from the woman I am today when I did that degree. I hadn't learnt to stick up for myself yet. I hadn't found my passions in life yet. I was just this in this awkward 'post-teen' phase where you don't really know how to be a person and you're kind of testing out what things are like in the adult world. You don't realise that you have the ability to fully control your own future. I would take my emo teen years a million times over reliving that stage of my life. Actually I really liked my emo teen years. MCR and The Used for life.
Not being me presented a problem. These days I would call myself an over-opinionated, strong willed (yet caring), childish and yet mature woman. Before diabetes and during my degree I was weak. I didn't stand up for myself.
So I cringe when I think of my degree because I inevitably remember all those moments when I should have been stronger. When I think of some of the lecturers and tutors who took their own bitter feelings about an industry that doesn't really exist in Australia out on students. When I got the most awful email I have ever recieved in my life from a lecturer and was told by the administration staff to apologise to that lecturer when I raised it. And I did. Because by that stage I was so close to then end, that I didn't want to jeopardise the freedom from that awful degree that I could almost grasp. Then I found out later that he had acted the same way towards other students and I felt ashamed that I didn't stop it earlier.
I cringe when I think of the lecturer who acted almost openly hostile. It was unfortunate that he was basically the principle lecturer. Someone who offered help and advice only if you pandered to him. And if you didn't pander, made it obvious that he didn't have the time of day for you.
He used to live down the road from me when I was in my final year of university. I ran into him once when I was collecting a parcel from the post office. It was my last semester at uni and I had definitely realised by then how much I hated my degree. He said 'Hello' in an uninterested manner. I replied with "this is awkward" and walked out as quickly as I could. The next time my lease was up for renewal I moved out of that suburb.
I saw him again when I was shopping the other day. He didn't see me. I didn't know if I wanted him to notice me or not. Inevitably, when you see someone after a while, they ask what you're doing. I don't think he would like my answer, but I really want to tell it to him.
I'm doing nothing with my degree. As best as I can pinpoint, I blame my degree for my Type 1 Diabetes. The degree caused me such severe stress that I was regularly passing out from the sheer pressure of completing it. For the last year of my degree I was visiting the PA Hospital for CBT to help with my anxiety. Funnily enough, I never needed to again after I left uni. And Funnily enough, I was diagnosed with diabetes less than 3 months after leaving uni. When I had pressure put on me again to go back and help further with sending out our final grad project to film festivals across the world.
I wanted to tell him that he was part of the reason why I will spend my entire life fighting to keep my blood glucose under control. That if I lose a leg, or go blind, he played a part in that.
At the same time, I didn't want to say that to him. Because I don't hate my life with diabetes. I've accepted that it is part of my life, for all my life. And telling him what an awful person he was isn't going to change anything. It would just dredge up horrible memories of diagnosis, which I am past.
I made the best choice, and I walked away quickly, before he could see me. And really, he's probably been so rude to so many other students since, that he wouldn't have remembered who I was.





