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Showing posts with label Diabetes Blog week. Show all posts
Showing posts with label Diabetes Blog week. Show all posts

Thursday, 14 May 2015

Diabetes Blog Week Day 3 - Cleanin' Out My Closet





Yesterday we kept stuff in, so today let's clear stuff out.  What is in your diabetic closet that needs to be cleaned out?  This can be an actual physical belonging, or it can be something you're mentally or emotionally hanging on to.  Why are you keeping it and why do you need to get rid of it?


I don't think I ever quite forgave my pancreas for leaving me. For packing its bags and stealth-sneaking away in the middle of the night. No note. No goodbye kiss. It left. Just like that. I had a working pancreas, then I didn't. I should've microchipped the damn thing. Maybe in 10 years time I would get a call to say it had done an 'Incredible journey' Chance, Sassy & Shadow style and found its way home.

I just kind of shoved those feelings of abandonment deep into my closet, like so many pairs of shoes I didn't want my husband to know I bought. 

So maybe it’s time I light up the funeral pyre and let it go. But with much less singing. I don't actually like Frozen and I find it repugnant (New favourite word) that I know what that song even is. 

I’ll pick a funeral home. Write my Eulogy. Eulogy to a dead pancreas.

“Today we mourn my dear, beloved, dead pancreas. He was a good pancreas, a hard working pancreas, who was taken at the prime of his life, at the tender age of 22. I close my eyes and imagine that he was needed for a higher purpose. I imagine he fulfilled his purpose here in this life, and got be reincarnated as a higher life form. Maybe a heart.   Perhaps, in another life, I will see him again.
I am greatful for every moment we got to spend together. We ate a lot of cake together. It was his favourite food. Indulged in chocolate. Sometimes we even ate potato together. Mostly I miss the way he would let me eat popcorn. I miss eating popcorn with my pancreas. 
We took holidays together. He never brought a ticket, I would just smuggle him through the airport security in my stomach. 
When someone you love passes away, there is a strong temptation to remember them perhaps a little too well. Misdeeds are forgotten. Offenses are forgiven. Only the most shining characteristics of our loved ones make it into the version of them that we keep with us when they depart. My pancreas’ only fault was in leaving me behind, to toil without it.” 

At this point I’ll probably start wailing hysterically and beat upon the tiny tiny coffin I will buy for it. By coffin I mean shoe box. It costs a lot of money to take over your own pancreatic duties, I can't afford a coffin.

I suppose there will be a wake. People will bring me cards and flowers and cry. I have already cried hysterically and mourned, so I will probably just walk around, happy as larry, trying to find the cake people bring you when you’re upset. For now, seeing as I am pretending to bury my pancreas today, I will just eat my leftover wedding cake. I bet my pancreas regrets leaving me now. My wedding cake is delicious (White chocolate and honeycomb with apricot buttercream, anyone? I can see you salivating).

Farewell, Sweet Pancreas, Parting is such sweet sorrow.








Monday, 11 May 2015

Diabetes Blog Week Day 1 - Can



In the UK, there was a diabetes blog theme of "I can...”  that participants found wonderfully empowering.  So lets kick things off this year by looking at the positive side of our lives with diabetes.  What have you or your loved one accomplished, despite having diabetes, that you weren't sure you could?  Or what have you done that you've been particularly proud of?  Or what good thing has diabetes brought into your life?


As soon as I read this topic my mind immediately flashed to the story of the little engine who could. I've had that little train running through my head thinking he can for about half and hour now, and I kind of wish he 'could' in someone else's mind. I'm seriously nearly reverting to watching that horrible 'Cat Dance' youtube clip. (If youdon't know what I'm talking about and want a dancing cat in yourbrain for the next 3872 days, go ahead and click).

I know there's plenty of things that 'I can' with diabetes. Most recently someone my amazing husband agreed to marry me. I got through the entire ceremony and reception without a hypo. I didn't think I could do that, but I did.

But I want to focus on something 'I can' in the future. Because all the stuff in my past, is already stuff that I could.

One of the big things I want to do with my life is go swimming with sharks. With the teeth and the sharp and the evil little eyes. I must do this, so I've decided I can do this. I don't know how it works with Diabetes, but I'll figure out a way. And since my wedding is over now, I actually have free time with which to research this sort of stuff. Oh, Free time, how I have missed you (Side note to anyone getting married: If you think you want a DIY wedding, make sure you don't also want a life).

Back to the shark diving. Definitely something I can do. I'd be interested to see what the depth is on the new 640G and how far underwater the CGM works. I'd guess just out of the range I want as I'd be more inclined to do a shark dive in an aquarium – where there's nothing separating you from the sharks, rather than a cage dive. My goal is to do both.

One day I hope to be doing a post on how to shark dive with T1D. And hopefully that one day is soon.



Friday, 16 May 2014

Diabetes Blog Week Day 5: Diabetes Life Hacks


Share the (non-medical) tips and tricks that help you in the day-to-day management of diabetes.  Tell us everything from clothing modifications, serving size/carb counting tricks to the tried and true Dexcom-in-a-glass trick or the “secret” to turning on a Medtronic pump’s backlight when not on the home-screen (scroll to the bottom of this post). Please remember to give non-medical advice only! (Thank you Rachel of Probably Rachel and Kelley of Below Seven for this topic suggestion.)


Diabetes Life Hacks? I probably don't have anything original that I haven't picked up from other blogs or D-forums/chat rooms.

I guess I struggle with remembering how diabetes devices affect my body - like lancing devices, set changes, etc. So whenever I need hacks these are the things I look for. 

For the 1st 6 months I was diagnosed I have a favoured finger that took the brunt of testing. Consequently that finger is now very calloused and require 1 1/2 whole lancing points above my other fingers to draw blood. Eventually I worked out a system where I assigned each finger to a meal or a specific testing reason. My thumbs are for my pre and post breakfast, index fingers for pre and post lunch and middle fingers for pre and post dinner/before bed. My ring finger (and the equivalent on the opposit hand) is for pre-driving checks and my pinkies, because they bleed much more readily are reserved for hypos. In doing this my fingers have a chance to heal and the callous on my favoured finger is slowly softening. 

As well as this, I change my lancet on pay day every fortnight, which is the same day I buy my strips and other diabetes supplies, so I am just able to start with everything fresh. Failing every fortnight if I buy supplies in bulk, I try for at least once a month


My next hack is to remember when I last did my set change as I always forget and will just wait for the insulin to run out. I calculated an average of how much insulin I use per day and I fill my insulin up with this exact amount for 3 days, plus approximately 6 - 7 units for prime/air bubbles. It also helps to curb overeating because I have to remember I have only given myself x amount per day, so if I pig out one day I take it easy the next to save premature set-change.


The other hacks I use most often are about remembering carb counts for things. When I package up sausages I will write on the outside in marker how many carbs are in the serve I just froze so Its not something I have to look up later. Or for cereal I find a small bowl, scoop, etc that is roughly the size of a serving and have attached to it a label with all the cereals I eat and how many carbs is in 1 scoop - so that way  I never have to weight it and can just quickly use the scoop to get out an exact amount of carb. I tend to cycle through about 3 different cereals so the scoop has all 3 written on it and I just move it from one box to the next. 

Not over exciting hacks, but they help make diabetes care just that little bit easier for me.






Thursday, 15 May 2014

Diabetes Blog Week Day 4: Mantras and More

Yesterday we opened up about how diabetes can bring us down. Today let’s share what gets us through a hard day.  Or more specifically, a hard diabetes day.  Is there something positive you tell yourself?  Are there mantras that you fall back on to get you through?  Is there something specific you do when your mood needs a boost?  Maybe we've done that and we can help others do it too? (Thanks to Meri of Our Diabetic Life for suggesting this topic.)

Dance Magic Dance! I am a shocking dancer. No sense of rhythm whatsoever. But when diabetes is kicking my ass, my lack of groovin' moves is the least of my worries. So when I'm having a hard diabetes day, I post a few gripes to the DOC, and when I have had understanding and suggestions a plenty thrown my way from amazing people all over the world, I go to groove town. I twerk in my kitchen like no-one can see me (except my bogan back-door neighbours really can see me).




Its not just the dancing that helps - I have a collection of songs that specifically relate to diabetes (at least in my head they do anyway). They're all mostly break-up songs and I sing them to my defunct pancreas. Except for that one random 'The Used' song "Together Burning Bright" which I reserve for when I've had enough hypos that my happy-making hormone is exhausted for the day. On particularly bad days I close all my windows and doors and warble along with Bert McCracken to how everything is going to be AOK at the end of my day:

"I think it's gonna be alright, now
I think it's gonna be okay
Just close your eyes
'Cause we are only sparks
But together burning bright"


Failing singing and dancing, the diabetic rap always makes me want to wrap my diabetes in a bear hug again, cos without diabetes, things like this wouldn't exist:








Dancing doesn't exactly solve diabetes problems...but it makes me happy and gives me energy, which bad diabetes days suck from me hard.

Monday, 12 May 2014

Diabetes Blog Week Day 1: Tell Me a Story



For the 2nd year now I am taking part in Diabetes Blog Week. Today we are supposed to be talking about the diabetes causes and issues that really get us fired up.However, I think I do this on all-to-regular basis and I'm just not in an advocate and cause mood, so I decided to go with the 'Tell me a Story' WildCard instead. 

Write a short story personifying a diabetes tool you use on a daily basis. A meter, syringe, pump, pill, etc. Give it a personality and a name and let it speak through you. What would it be happy about, upset about, mad about?  (Thank you Heather of Unexpected Blues for this topic.)


The dark is all around as I wait, crammed against many more of my kin. We all stand, patient, knowing that one day, we will see the light. One day it will be Bob's turn, or Mary's turn, or my turn.

Outside, I can hear a snap. I am rattled about in my prison. A grubby, pin-pricked finger reaches in. Is this is it? Is it my turn? I cannot bear to stay here, in the stifling blackness anymore. The finger passes me by. Now is my chance; I stick myself firmly onto the warm pink flesh.

Now. The light is everywhere, flooding me with warmth. I bask in the world around me as I am roughly shoved into the care of a higher intelligence. A little care, please. I am here to help, after all.

I tense with anticipation as I see the red shadow near. What I was made to do. Fulfilment. I drink in the deep iron flavour of the blood as the finger tries to steady beside me. I relay the flavour to my God, a very sweet tasting blood. My duty fulfilled.

Now. I am finished with the obligations, I can help no more. But I am not ready for this adventure to be over. The world outside my confinement is so big, so bright. As I am wrenched free of my god, I deftly twist and manage to fall. I drop a long, long way and strategically land on a tile in similar colour to my own body. Eyes lumber close, stupidly blinking. However I am a master of disguise. They will never find me. At the first opportunity, I see a dark passage and wriggle away underneath, somewhere I may rest to plan my forays into the world.

I am halfway there when a creature of too much hair sees me. It pounces and attacks, dragging me off to a corner as I fear for my life. It appears my end is not today, as the creature is frightened away by shoe-clodden feet. A foot passes by me and I quickly swing under the footfall of the 2nd step, gripping tightly to a shoelace as it lifts.

I ride to freedom. The greens of the great outside await me. I drop off and into a pot plant. I plan to scale the heights of the washing line and spend my night in a comfortable looking sock. My adventure, the adventure of Harry, a test-strip who dared to dream, is just beginning.