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Showing posts with label Insulin pump. Show all posts
Showing posts with label Insulin pump. Show all posts

Sunday, 15 November 2015

3282

Yesterday, I talked about the 'T1D Looks Like Me' campaign which you can access here if you would also like to smurfify yourself.

Today, I'd like to show you what a different aspect of T1D looks like.

A year ago, on WDD2014, I started a collection, of sorts. The 'D365' project. It's not quite complete, but I thought I would share a preliminary look with everyone now that the initial collection is finished.

This is what a year with Type 1 Diabetes looks like:



125 Set Changes. 


125 times I pushed a cannula into my leg, stomach or back. That's  1 cannula every 3 days.


Some of them hurt. Alot. Some hurt for the entire 3 days they were in. We don't have any way to x-ray ourselves & find the nerve clusters before we put each cannula in.


3282



3282 Testing Strips. That's how many times I poked a sharp needle into my finger, hard enough to make them bleed. 


3282, is an average of 252 tests per month, 62 tests per week and 9 tests a day. Even when my fingers ache.



208. The number of hypoglycaemic events experienced. The number of times that my blood sugar was not high enough to sustain life long term and required immediate attention. That's 1 low blood sugar every 1.75 days. Sometimes, you can have 4 in one day, and sometimes, none for a week.

There is no way to predict a hypo (or trust me, we wouldn't have them!).

But in Diabetes land, we have this amazing tool to help us manage our diabetes. It's called CGM.

CGM is expensive. But it can stop hypos. Want to know why I was hypo free for 5 days straight? CGM. 

Think 3282 is an awful lot of pricking & poking? CGM gives my fingers a much-needed break.

I'm not holding out for a cure. I don't believe in one and I don't particularly feel like I need one. I can and do live my life just fine with my T1D. What I do want are the tools to HELP ME live with this disease, day in, day out. Like CGM. And in future, the artificial pancreas, or closed loop system, or the smart insulin patches.





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Reasons Why I'm Hypo:

The counter has been reset. I went Christmas shopping.

Tuesday, 4 August 2015

Fantasy Diabetes Device

Whenever Blog week rolls around, there always seems to be a topic on fantasy diabetes devices. I usually ignore that topic and run off to find a suitable wild card topic. There's never been anything that I needed a diabetes device to do that we don't have already. I mean, an app on your phone where you take a picture of your food and it tells you how much carbs are on your plate would be cool, but I don't really need it. I've got chocolate all figured out already, so really, I'm good here carb-counting my own meals.

But now I've thought of something. Guys - it's going to get a little girly in a second, so if that isn't your cup of tea - kindly click away to another, less feminine, post.

One of the awful truths about being female is that whether you want her to or not, your Aunty Flo wants to drop in every month or so for some female bonding time. You learn to live with it. My problem is that my diabetes loves Aunty Flo. He's always acting out whenever she comes to stay, trying to get her to notice him. But then the diabetes tantrums start once she leaves and he realises he's been left all alone again.

Its only a recent problem. Despite sulking objections from all my HCP's, a few months ago I quit taking the birth control pill after deciding I couldn't live with the side effects anymore. Best decision ever! Unless you talk to my HCPs who weren't too happy with the decision. Sadly for them, I don't care to listen to their opinions on the matter at all and am rudely ignoring their pleas to think about the possible unplanned children. I don't really plan on having any unplanned children, so I don't know what they're worried about really.

Since ditching the pill I have no idea what diabetes wants anymore. I know that I have a pattern that follows my menstrual cycle but by the time I can be bothered to change onto another pattern in my pump I've moved on from the low stage to the high stage.

So basically, what needs to happen is that someone needs to add a new kind of pattern to the pump that follows a set cycle of time before it loops back. Currently I have 3 different patterns set into my pump - 'nomal', 'A' & 'B' - normal for when my BGLs are behaving, A for luteal and B for follicular phases of my cycle. I'm ridiculously lazy and would rather spend a week hypoing a minimum of 5 times a day than simply switch my pump to my A or B pattern. And I won't even consider setting a temp basal every day. Its just more to think about.

My fantasy diabetes device is a pump, that upon set-up, asks if you're a female or male. You can select female and set a basal cycle length - i.e. 28 days. You can then set patterns inside a pattern - so tell it to have one pattern for say 5 days, before automatically switching to the next pattern, which may deliver less or more insulin, and so on and so forth, to follow your cycle.

Does anyone realise how much easier this will make my life? Why is this not a thing yet? Medtronic, are you listening?


Thursday, 22 January 2015

640genius

Let's start this post off with something amusing. A few days ago my 3 hour CGM trace totally looked like a cat. Excuse the bad BGL. Apparently my supposed carb-free meal that I bolused 2 units for anyway is not all that carb free.


Moving onto the important stuff. Yesterday, a 4 year old boy from Perth recieved the 1st MiniMed 640G pump. I had the opportunity to play with one of the pumps last week, so I thought it only fitting that I should wake myself up enough to ramble about the new pump, and how in love I am. And how super jealous I am of that 4 year old kid.

This is just a first impression based on an hour of asking my rep loads of questions; but I'm preeeeeety sure if I was one of those people who married mundane random objects then I would be saying my vows to the 640G pump come May instead of my fiance. If you're reading this my dashing H2B, sorry darling. Girls just like men who save their lives. And my pump does it more than you do.

The 640G. Here we go. Aesthetically, if you're a boy, you're gonna love it. If an insulin pump could have muscles, this one could have rivaled Arnold Schwarzenegger at his peak. It looks strong, and sturdy, and ready to do some life-saving business. I will definitely be upgrading to the pink model (the 640G comes in pink, blue, opalescent white, black and purple) come upgrade time, because I am a girl....and I like my pumps to look pretty. All the pumps have a black base, with a coloured front. You can choose to stick the colour onto the back as well or leave it plain. Personally, I hope they release decals or gel cases for it as with the previous models of pump. Size wise this baby is only a few mm more than the previous models, probably to help with all that new waterproofing!



The new 640g

Now here's the fun part, all the exciting features that I am still trying to wrap my head around. As always with me, let's do a list!
  • Bigger, brighter, better screen. Actually I don't think its bigger, but it is certainly brighter and better. The screen is now colourful and has a light-sensor that will change the back-light according to your surroundings. No more squinting in the sun and groping around blindly at night.
  • The screen displays more stats at a glance. It tells you how much active insulin you have on board without having to go into a stat screen anymore. If you have CGM on the graph is displayed all the time. There is a display at the top of the meter for insulin left in the cartridge & battery, as well as a visual for when your next calibration is required for CGM. There's probably some other stuff that I forgot already.
  • Menus are almost the same, but with some added features, such as the ability to choose which bolus types you want to have activated. For example I use Normal & Dual Wave boluses quite often but I haven't got the foggiest idea what a Square bolus is...so no need to have that activated.
  • There are options now for a pre-set temporary basal. As with the last pump you can add more than 1 basal pattern, but you can now add temporary basal patterns of a predetermined time length and strength. So you can pick a preset exercise temporary basal, etc. You can also NAME these patterns, so you don't have to remember what pattern A, B and C are meant to stand for.
  • Again 2 reservoir sizes :)
  • Waterproof!!!! Although I never needed it before as I am such a bad swimmer, I do feel confident in the fact that I can accidentally fall into a pool with my pump on now if I should wish it. Or get caught out in the rain, which is actually very likely for me as I love love rain.
  • Customisable alarms.
  • Meter that talks to the pump, with a better margin spec than the original (15% as opposed to 20). The Meter also has a strip port light for late-night testing. And my personal favourite that totally won me over to actually trying the meter: DOUBLE-DIP strip technology. Yep, you read that right. NO MORE NOT ENOUGH BLOOD ERRORS! Does anyone else realise how much money I will save on wasted strips because I didn't get enough blood. (Just clarifying: double-dip technology means you can add more blood to the strip if you didnt put enough on the 1st time).
  • Glucose meter boluses for the pump. It does not use the bolus wizard, but you can use preset boluses on it. Eg. you can save a 'breakfast', etc. bolus if you eat similar carbs for that meal and just select that bolus on your meter. Soooo if you were like me, and say, getting married and did not want to pull your pump out all the time, you could do your wedding tasting prior to your wedding, count the carbs and save it as a specific bolus that you could access off your meter. Not counting carbs on wedding day? Check. Also perfect for girls who don't want to grope around their tops to bolus on nights out.
  • Glucose meter is the download USB. I have 3 and I have lost them all, but I don't lose my meter.
  • Infusion Set change alarm. Yep, you can tell it to remind you. Which is perfect for me because I forget and then find out halfway through the day that I have run out of insulin. Whoops.
  • The pump clip acts as the battery-opening tool. So you can finally bank all those 10c pieces you keep lying around just for this use.
  • You can stop a bolus delivery in progress with a quick stop bolus button during delivery, instead of going through the menu and having to suspend the whole pump and then restarting the whole pump again.
The new 640G, Sensor & meter in real life compared to the brochure

There's probably a bunch more stuff that I didn't get to see.

Which brings us to the CGM. New Smartguard technology. I know they would have done some trials and if I did a Google search I would probably find some statistics to throw at you about how well it really works and all that jazz. But honestly, I'm diabetic, I deal with enough numbers already, I don't want to look at statistics. I just want to look at what it does. Which is to try to stop hypos, before they happen.

So while my current pump has low glucose suspend, which suspends the pump on low glucose, Smartguard has predicted low glucose suspend. Basically it will try to head off the big bad hypo bear before it even attacks by suspending insulin delivery before you get hypo to keep you in a hypobear-free territory. Once your glucose is stable or rising again the insulin pump will resume insulin delivery so you don't get high as a kite either.

It is a good point to note that the transmitter is different - it has a G written on it (and probably is more advanced too) - so you cannot carry over your old transmitter to use with the new system. However I have always gotten my transmitters on great deals, so I wouldn't be surprised if they offered you a deal on sensor start to help with set-up costs.

I should probably leave it there for now and let you all revel in the fact that technology is 1 step closer to the closed-loop/artificial pancreas system.






Disclaimer: Medtronic did not ask me to review or write about the new pump. I just like new technology and wouldn't have left them alone until they let me see the new technology for myself.

Saturday, 10 January 2015

The arrival of Luna Lovegood.

Luna Lovegood came into my life this past hot, humid Monday. Her arrival was announced by the sudden screaming of an air raid alarm my doorbell*. I waited 5 days for her to arrive. 5 long, confusing, up and up blood sugar days.

She was hurriedly thrust through my doorway by an irate muggle delivery man, who demanded I make an unbreakable vow before I could take her. I signed my life away for her.

In awe, I took this beautiful being into my home. I carefully pulled her from her travelling confines and set her up at the table. Gazing upon the power of her. Staring at the beautiful blue.

Hurriedly, I couldn't wait anymore. My new pump. I had forgotten my morning Levemir so she had arrived in perfect time. She sang as I set her up. I hated the singing and told her to shut up. I quietened her to a hum, as I set about tasking her to become my perfect companion.

I connected her up. Relief flooded through me.  Luna Lovegood, the carefree spirit, allowing me to be me again. And doing some serious magic on my BGLs.


* - I'm not even kidding. Everytime someone rings the buzzer to my unit, I think we are under attack.