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Showing posts with label Insulted. Show all posts
Showing posts with label Insulted. Show all posts

Thursday, 8 January 2015

Dear Jamie Oliver (An Open and Angry Letter)

Dear Jamie Oliver,

I don't know what you hoped to achieve with that blown-up piece of ass that you put on display today. Something about clean water apparently. Unfortunately, That's not what I saw. I just saw someone being wrong about diabetes. Again. So I will let you know that you are not making a new and profound statement about the correlation between certain foods and drinks and Type 2 Diabetes (Yes - there is more than 1 type of diabetes...something you clearly did not even consider when erecting your gigantic 'advert about how little you know of diabetes' coke can)

I guess you did achieve something: You once again brought diabetes to attention in a light that practically begs us to be ashamed of ourselves for having diabetes. You once again told the public that this is something we are doing to ourselves (through our decision to drink certain drinks or eat certain foods). The public doesn't make the connection to stop drinking coke as it MAY be a causation to diabetes. The public just sees you purporting to play the blame game with PWD's (person with diabetes). They will see this and follow suit.

You are not making any statement at all that the public hasn't been told at least 1008103427 times already by various health organisations. So here's a tip: stay out of it. Because at least the health organisations do it with tact, and facts. The health organisations don't just go about erecting huge signs of ignorance everywhere they go to try to make their point.

In fact, for your point to have been even remotely construed as close to a real fact you would have needed to label that coke can with: "Type 2 Diabetes proven to be caused exclusively by drinking coke all day, where the patient has undergone studies to prove that they exercised, ate otherwise healthily, had no family history of type 2 diabetes, had never taken any drugs or medications that might aid in developing type 2 diabetes and been blessed with amazing genetics, not be caused by having an old and tired pancreas and not be of Aboriginal, Indian, Chinese, or any other ethnicitiy that predisposes to Type 2 Diabetes". It might have taken up a lot more space on the can, but at least it wouldn't be insulting or degrading to anyone who currently has diabetes. And it might have actually informed the general public about diabetes and its causes instead of continuing to instill the mistaken sense that 'we did it to ourselves' towards diabetics, that trust me, we already feel from the general public.

I have had Type 1 Diabetes (not related to an intake of Coke in any way, shape or form) for nearly 3 years now. I haven't had a drink of coke in over 5 years now. I bet your mind is blown right now. Somebody who was young, fit, healthy and DIDN'T drink coke got diabetes.

Diabetes isn't the only obesity, coke-drinking related disease out there. If you wouldn't plaster 'Stomach cancer' across the abomination that you dragged out today, don't drag diabetes into it.

Jamie Oliver, for some reason your ability to make food has made you somewhat of a celebrity. You have the power to influence people. And today you abused that power to bring diabetes into something that it didn't need to be brought into. You are talking about access to clean drinking water in Californian schools. What does diabetes have to do with this? You could have talked about dehydration, which I would assume would be more prominent if clean water for drinking is not provided. Or kidney problems, probably miles more relative than diabetes,

In fact, as 1 commentor on your post pointed out - Coke can actually SAVE the lives of people with diabetes (all types) during hypoglycaemic episodes.

Given that celebrity is as celebrity does and doubtless you'll stick your hand into the diabetes pie again, I hope that you can grow from this experiance, and consult with the people you are hurting before you hurt them. Maybe approach your local diabetes body and get their advice?

You might find it'll be better recieved next time if you do.

Most sincerely,

-Someone your ignorance hurt.



Monday, 3 November 2014

Understanding

I was at an event hosted by Diabetes QLD last month, and there was an endocrinologist speaker who made mention a couple of times that people with diabetes were still the same people, but with an external pancreas.

A lot of people in the audience nodded their heads in agreeance at the remark. I always find these remarks confusing and difficult to make sense of. When talking of diabetes and the role it plays in our lives, I don't agree with this statement. Diabetes most definitely has shaped who I am as a person and how I live my life. I think it is foolish and silly to believe that you are still the same person as you were before diagnosis and that diabetes is just a little something you do on the side for shits and gigs.

I believe in giving diabetes the distant respect it deserves. It is more than running an external pancreas, because that external pancreas is being run 24/7. Saying we are simply running an external pancreas detracts from what we deal with on a daily basis.

Diabetes is my silent stalker, following me everywhere I go. 3 years ago, I was stalker-free. There were no hypos and highs lurking in the shadows. I had never had to sit out a meal and watch other people eat, despite being starving because my BGLs were too high. That level of self-control didn't exist for me before diabetes.

There is a fine line between letting diabetes run your life, and between giving it the attention needed.
This line also spills over into my relationships with other people. Which is another reason I didn't like this particular statement.

I learnt fairly quickly once people knew I had Type 1 Diabetes that they didn't actually want to know anything at all about it or how it affected me. My Diabetes is now only discussed without about 3 or 4 non-diabetics.

In the company of most Type Zeros, I stopped treating my diabetes like it had any impact on me. Then one day my older brother told me that 'he didn't feel sorry for me having Type 1 Diabetes because I could still eat whatever I wanted'. But he did 'feel sorry for his friend who was coealiac and a VEGAN BY CHOICE', because 'she can't eat much'.

I don't want pity from anyone for my diabetes. I live well with my diabetes. I just want understanding.

It was glaringly obvious that my brother, unfortunately, had no idea what it was that made having diabetes hard to have. I'm sorry your friend has coeliacs disease, I really am. That must be shitty. But the vegan thing - thats her choice. Comparing my auotimmune disease to her choice was really crappy. Being able to eat what I want is the trade off I get for nights when I wonder if I will wake up alive the next morning. Its the trade off for taking a massive supply bag with me everywhere. Its the trade off the fact that I might go blind one day. I don't know what coeliacs disease causes, but the choice to eat gluten or not is probably not that hard to do. If I inject insulin - the medication that saves my life daily - I am at risk of death by overdose simply because today I am more sensitive to it than I was yesterday. That's what I want people to understand - that its complicated and I don't ever get a break. I am always thinking about how to handle every situation with my diabetes.

I was on a CityCat the other day and for some reason read the safety instructions on where the life vests were located in case of emergency. I had to figure out a diabetes plan. My pump isn't waterproof, so in the hypothetical emergency, I was hoping I would be able to clip it to the top of my life jacket so it would stay above water and still work. I would have to somehow take my juice with me as I swam to shore, because that would be unintentional exercise that I had no time to prepare for, so the likelihood that I would hypo either in the water or on shore would be very high.

That's what diabetes is. No offense meant to my brothers friend who is coeliac and chooses to be vegan, but I don't think that those issues means that she has to worry about medical emergencies if she has to swim unexpectedly across the Brisbane River.

Diabetes is not just something I do on the side when I feel bored. Thats what I want people to understand.




Tuesday, 1 July 2014

The Cronut of all evil

I have blogged a few times about how ignorant comments made about diabetes or to a diabetic about their condition can make people with the condition feel.

Most things, whilst I can get upset, I can politely discuss with the offending person because I know a very large part of what they have said comes from misconceptions made worse by the very wrong public perception of diabetes.

Then there's The Paramount Coffee Project, who came in with fully loaded bazukas and blew all other ignoranases clean out of the competition. The fact that I am still cranky enough the next day to write this is testament to the anger that pulsed hard through my veins.

I opened up my facebook newsfeed yesterday to see a post from the Paramount Coffee Project being passed around in diabetic circles. They had erred harshly on the side of "how is being this horribly ignorant and rude even possible" with their post. They had created a secret menu item that was only available if you asked specifically for it - prior knowldedge only kinda deal. Which is a great marketing strategy. Unfortunatley their marketing genius obviously used up all his genius on the secret menu idea and had a severe case of brain fart when coming up with the title and marketing catch phrase of this secret item.

They called a ridiculously delish looking cronut topped with affogato and some other fancy thing I can't remember 'Diabetes'. Yes, Diabetes is what they named their dish. The cronut they had pictured was very soft and looked like heaven for your mouth . Diabetes does not look like this. Diabetes looks like fingers covered in red and black pinprick marks. Diabetes looks like an alien insulin pump canula stark white against pink flesh. Diabetes looks like bruises, blood and needle marks. It looks like dark circles under your eyes and worry lines on parents' faces.

There's infinite amounts I can say about how naming a dessert 'Diabetes' is just plain wrong and should never have been suggested or followed through with in the first place. Comments were made about how there is no way they would ever call a dessert 'SIDS surprise' or 'Cancer Cake' (N.B. - I fully understand how serious these are - this is for example only) - because diabetes isn't recognised as being the serious disease that it absolutely is.

After the shock of the name, I read the description, which ended with the phrase 'So come in and ask for diabetes today'. This was the part for me, that made me wish all sorts of evil things on this establishment. NOBODY - I repeat NOBODY would EVER EVER EVER IN A HEARTBEAT ask for diabetes. NOBODY does this 'to themselves' willingly. I don't ask for needles, sleepless nights, hypos and hypers, fingerpricks in the blistering cold or anything else that settled into the spot where my defunct pancreas resides when diabetes wriggled it's way into my life.

Thankfully, the DOC was all over this. I think this post was averaging 3 tirades per minute about the seriousness of what they thought was a 'joke'. People posted links to tribunals to make official complaints, tagged Diabetes Australia and all sorts of fun things to help with the message that this was not even a little bit o.k.

Unfortunately for the establishment, this was all going on whilst the 'creative genius' behind it all slept soundly. The post was removed today and a belated apology issued. I don't know how many phone calls they recieved this morning. I feel sorry for the staff, who might have had to deal with eventuated threats from parents that they would bring their 5 year old with Type 1 in to the store so the workers could explain to him that some cronut he had never eaten was the reason why he has to inject insulin for the rest of his life. For Paramount's employees sake, I hope they left the phone off the hook today.


Power to the DOC (who I can see are still worked up over it this morning based on the posts and jokes being made about Paramount). I hope I never see anything this disgustingly ill-informed again in my life.