'EXPOsing Diabetes', an annual
event in Brisbane held by Diabetes Queensland, rolled around on Saturday. I
love these events, and recently swapped over from attending them to
volunteering at them.
I got the best of both worlds. I got to spend my entire day
talking to other people with diabetes. As always, it's a place to feel normal.
A place to relax and let my diabetes run free. Well, maybe not too free...
From behind the information table, I briefly wondered, as I
stood next to people with fully functioning pancreases, if they ever feel
overwhelmed by us at these events. If they stand back a little and wonder how
they're going to escape a crowd clamoring over them for information and for
the free diabetes goodies on display. Do they feel different? The odd
ones out? Do they think about, and hope, that they'll always be on their side
of the table? Do they hear patient stories and sigh in relief that it’s not
them?
I don't know why I wondered this. I think because I was on
a different side of the table to usual. I was separated from the patients.
Usually, I'm swapping stories. But I just listened this time. To a story that
was bigger than just my diabetes, one that belongs to many people. It’s the story
of people with type 1 diabetes, type 2 diabetes, their families and friends.
We share
a great story, simply by living our lives and not letting diabetes stop us.
Thankfully, sharing information and enabling self-learning is a part of this
story.
It was
just before afternoon tea break that I found myself talking to Rob Palmer. A
plunge in BGLs had seen me having just scoffed 3 mini muffins in quick
succession. He asked how the muffins were and all I could offer up was that as
I was cramming them in I had a vague sensation that there was food in my mouth,
but I wasn’t aware of having chewed that food or how I managed to swallow it. I
really didn’t know what they tasted like, because hypo doesn’t need you to
taste things. He pointed at a demolished jellybean packet and said it was from
his 2.something earlier.
Later
that day I quietly slipped into the back of the Type 1 presentation room to
hear Rob address the audience. His scattered story was enrapturing. He was
someone whose story the audience ‘got’. He had all the hairy diabetes moments that
are part of daily life for us, but he also had the great stories about spending
a week on a boat surfing, long days at work and doing it all with a smile on
his face.
He
rounded it out by passing on the best 10 2 letter words strung together: “If it
is to be, it is up to me”. It encapsulated the day perfectly. I love EXPO
because it does aim to empower people with diabetes to live their lives to the
fullest. Patient education gives us the tools to help us achieve the things we
want in our lives.
I don’t have
any dreams of being a TV star (I’ll leave that up to Rob, who has a much better
personality for it), but I have some good reasons of my own to take control of
my diabetes to make sure I can do what I want with life: travel, babies, getting
my kellion, throwing old lady tantrums and being buried with all my limbs intact.
Hi Ashleigh,
ReplyDeleteThe State Library of Queensland has selected your website to be archived as part of the National Library of Australia's web archive PANDORA:http://pandora.nla.gov.au/
If you would like to get in contact I can forward more information about this selective archive and send a formal request for permission to archive your blog.
Cheers
Gina Tom
Digital Content Librarian
Queensland Memory
State Library of Queensland
e: gina.tom@slq.qld.gov.au
p: 07 38407826